Archive for January, 2018

The double whammy

Friday, January 5th, 2018

Sometimes I can’t sleep – well actually, I may be dreaming that I can’t sleep. The other night I was convinced I was awake, but I had no clue about the earthquake that struck at 2:30am. But somehow, even dreaming I haven’t slept seems to make me tired.

So the double whammy is loosing sleep and getting the chronic fatigue.


When it hits

Wednesday, January 3rd, 2018

When it hits, it isn’t fatigue – it isn’t lack of sleep – it is either brain fog or a lack of desire to do anything. The brain fog means I can’t remember simple things. Last night I was trying to say I got essential oils for Christmas. It came out as “not incense, an aroma”. It took me 10 minutes to come up with essential oils in my mind – of course the person I had been talking to was long gone.

And the other symptom is the hard one to talk about – most people confuse it with depression when I try to describe it. But it isn’t that – the best I can come up with is that depression has an emotional context and this symptom does not. I can see however why people confuse it and why researchers might put the blame on the person and not the symptom.

I might act like I care about you or the task at hand – but I don’t. I simply balance an equation in my mind as to whether I care about you or it when I’m not sick. And if I do, then I’ll force myself to take action. And if I can’t force myself to take action, I don’t leave the house.

Exercise (specifically Yoga) and Chronic Fatigue

Monday, January 1st, 2018

Two common misbeliefs about chronic fatigue are that

  1. It is mental/emotional
  2. Exercise can cure it.

See Bad Science Has Misled Millions With Chronic Fatigue, Court Order Reveals and For People With Chronic Fatigue Syndrome, More Exercise Isn’t Better.

For me, my adventure began shortly after I started losing weight via walking/running and yoga. I’ve always wondered if that lifestyle change triggered the disorder in me, but I wouldn’t trade the yoga away for the disorder. I don’t have it as bad as most (I think) and my worst days sound like good days to some of the stories I read at

But, what yoga does bring me is a barometer to my health. I generally like my yoga instructors and some of them I love, so when I start asking myself why I am in a class, what I am getting out of it, and how long until it is over, I know I am near my worst. My worst? I won’t even go to a class – despite whatever grand scheme I have in place for attendance.

Some random links

Monday, January 1st, 2018
  • Molecular profile hints at inflammatory processes in chronic fatigue
  • Vitamin D Supplements Could Help People With Sleep Disorders, Study Says
  • People With Chronic Fatigue Syndrome Are Exhausted at a Cellular Level, Study Shows
  • NIH Study Aims To Unravel The Illness Known As ‘Chronic Fatigue Syndrome’
  • Bad Science Has Misled Millions With Chronic Fatigue, Court Order Reveals
  • A Controversial Therapy For ME Has Led To Claims Of Death Threats, Harassment, And Pseudoscience
  • For People With Chronic Fatigue Syndrome, More Exercise Isn’t Better
  • The Spoon Theory written by Christine Miserandino
  • The Spoon Theory Gave People the Wrong Idea About My Illness
  • Chronic Fatigue Syndrome/Myalgic Encephalomyelitis at The Mighty
  • Finding out about Chronic Fatigue

    Monday, January 1st, 2018

    The stories all seem to be the same, your friend gets the flu. You get the flu. Your friend gets better, you get better. Then you get sick again and can’t kick it. You think it might be depression, but you still can’t shake it.

    Eventually, you go to the doctor and you find out you have chronic fatigue. And then you have to figure out what that means…

    Some event in your life triggered it, it may have been the flu, it may have been stress, or as I fear, it may have been weight loss and exercise. 🙂

    (In my case, my friend got sick again and so did I. Only he eventually got over it.)